by Bill Sweeney Have you ever really thought about the statement, “God never gives us more than we can handle?” This statement sounds so encouraging and so comforting when we’re facing a difficult trial, but… I don’t believe it’s true. My living with ALS is more than Mary, and I can handle. I look around … Continue reading More Than We Can Handle
As the followers of my blog know, I’ve had ALS for twenty-two years, I’m completely paralyzed and unable to speak. I use an eye-tracking computer to communicate and I am totally reliant on Mary to take care of me.
I remember when I first started having to rely on others to help me with simple tasks. Even though my body was beginning to fail me and I sounded like a drunk when I spoke, I fought so hard to keep working after being diagnosed. Not just because we needed my income, but also because I just couldn’t imagine not working.
With my job as a Regional Sales Manager, I usually traveled two or three days per week, and usually left for the airport at five in the morning. I remember attending a convention and having to ask a coworker to button my shirt and put…
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I’m sure it’s the little boy still hiding in my 57-year-old paralyzed body, but I enjoy trying to pull off a good April Fools Day joke on Mary. In our thirty-two years of marriage, I probably have a 75% success rate.
It can be a real challenge to carry out a successful April fools joke with ALS because I can’t speak so I have to attempt to fool her via email or using my computer’s (no inflection) robot voice (the only “voice” I’ve had for the last twenty years).
As I’m sure you know, April Fools Day and Easter (the day we celebrate Christ’s resurrection from the dead) fall on the same day this year. The two have not fallen on the same day since 1956.
Are Christians foolsfor believing that Christ was literally raised from the dead?
Atheists, agnostics and those of other faiths, believe it…
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In the midst of a trial, the greatest temptation we face is to hunker down and wait for the storm to pass. I don’t believe this is ever God’s will.
We tend to view trials as a kind of imprisonment, thinking our life is on hold until the day we’re released from the grip of the life challenge. ALS has made me a virtual prisoner of my own body for the last 18 years. It has been a very cruel warden. But I look around me and see other people fighting illness or trying to overcome addictions, depression, abuse, debt and so many other cruel masters.
We must continue to hope and pray for freedom from whatever is trying to “holdus,” and we should do everything in our power to move toward that goal. But, in the meantime, we should look for opportunities for God to use…
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I was thinking about Good Friday when I woke up early yesterday morning. Then I thought about people using the phrase “Thank God It’s Friday” to celebrate the end of a work week and the start of the weekend.
Even though I haven’t worked in over 19 years, I remember that feeling of being so glad a work week was over as I was sitting in bumper-to-bumper traffic on a Friday evening or landing at the airport after being gone all week on a business trip.
Then I thought about the darkest Friday of my life.
After three days of grueling tests, which included cutting muscle samples out of my thigh without any anesthetic and a spinal tap that left me with a debilitating headache for three days, the neurologist, flanked by a group of interns, told to Mary and I that I had ALS. He went on to say…
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I almost made it through a whole year without being hospitalized or having any additional health problems. Almost. Then, with just a few days left in 2016, I caught a cold. The “commoncold” is not much more than an annoyance for otherwise healthy people, but for someone like me with weakened breathing muscles and only 30% of my lungs functioning, the common cold is much more than an annoyance.
On the morning of the last day of the year, I was having an extremely difficult time breathing even wearing my breathing mask. In addition to that, I couldn’t keep anything down. I was a mess, more than usual. Mary and I both assumed it was pneumonia again so she called 911 and within minutes we were in an ambulance en route to the hospital. ALS has brought us one adventure after another over the last 20 years.
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